ALD Resources

Connecting you to the right place

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Scientific resources

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Educational Videos

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Contact a Disease Specialist

ALD Connect wants to make it easy for you to connect with a specialist. Use our search feature to find contact information for specialists in several locations across North America. You can search for a doctor by specialty, by geographic location, or both.

Doctor Patient Webinar Series

Find the right information your looking for from What is ALD? to current medical treatments. See our latest webinars for everything ALD.

Clinical Trials 101

If you or a loved one has ALD/AMN, you know the heartbreaking frustration that there are not many treatments that can stop or significantly slow the all forms of the disease. You may not know that there are hundreds of scientists and doctors working hard to discover those treatments. That discovery depends, in large part, on the willing spirit of people with ALD/AMN who volunteer to be a part of a clinical trial. Start reviewing trials.

Newborn Screening Resources

When babies are born, their heel is pricked and spots of blood are placed on a special paper that is sent to their state’s newborn screening lab. Each state has a different list of diseases for which they screen. Learn more about newborn screening.